I’m still free from IBC. Thank God for I can breathe again!

On the 18th of August 2013, my dear friend and colleague Pattie Bradfield was teaching me how to Skype. (I know, I know, its 2013 and I’m just learning how to Skype J).  Once we finally got Skype up and running and Patti could see me, she noticed something alarming on my chest.  I saw that she kept staring at me with a concerned look on her face and she finally said, “What is wrong with your chest.”  I replied, “What do you mean,” and she responded by saying, “Your chest is swollen and red.”  At that moment, I got up and walked to a mirror and there it was.  It was puffy, red and it sat right below my clavicle.    My heart nearly stopped!  The only thoughts that ran through my head at that exact moment was OMG the cancer has returned! 

Determined yet scared, on the 19th of August, 2013, I went to my breast cancer support meeting and afterwards asked the breast cancer navigator, Lori Nuno at Arrowhead Regional Medical Center in Colton, CA, if she noticed anything strange on my chest.  As she was checking my chest out, three other ladies came over to take a look as well and they all verified what my dear friend had discovered.  At this point, my palms become sweaty and my head started ache.  As I was not trying to show my concern, Lori said that I needed to get to my primary doctor, ASAP.   The very next day, I called my primary doctor to move my appointment up due to the discovery, however to my pleasant surprise; Lori had already contacted my primary, Katherine Platt as well as the surgeon, Dr. Cohane at Arrowhead Medical Regional Center and on the 21st of August I was meeting with my surgeon.   Lori came with me to my appointment and I thank the havens she did so for the support that she gave me.  As the surgeon was checking me out, he did not notice anything, but Lori insisted that I move positions in hopes that the light would reflect on my skin to show the puffiness and redness that everyone saw days before.  Nonetheless, with all of our efforts, the surgeon still did not see anything.  I was able to breathe a little better but still I wanted a second opinion.   On the 22nd of August 2013, I drove an hour and half away from my home to Los Angeles, CA and had a Thermography exam (CRT) with Dr. Cherilyn Lee, PHD.  According to Doctor Lee, I had (5) hot spots in my right breast, but the print out did not show cancer.   On the 23rd of August I had an appointment with my primary and she also did not see anything and gave me a clean bill of health.   

To sum things up, Thank God I am still free from cancer.   The moral of this story is you must be proactive and forge relationships with your medical team, join whatever support groups that are available and speak up for yourself.  Early detection, even if you have already had cancer can still be a life saver.  You never know who is going to move mountains for you when in need.  I was extremely impressed by the actions of all of those mentioned above and not mentioned.   I’m blessed,  for I live to fight another day.

If you want to read more of my stories please check me and my organization out at fighting4thetatas.org and keep referring back to our blog. 

For public speaking engagements or for public appearances please send your request to Joshlyn.earls@fighting4thetatas.com

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Joshlyn Earls will be awarded by the Nonprofit Sector Foundation on Saturday, March 16, 2013. Event brought to you by Crocs Cares and Oprah Magazine

Greetings All!  We have exciting news and would love for you to Save the Date for this Saturday, March 16, 2013 from 6pm to 8pm.  Founder/President Joshlyn Earls will be awarded by the Non-Profit Sector Foundation, Croc Cares, and Oprah Magazine for her outstanding and selfless community services efforts.  Joshlyn along with the other CA winners will be honored at Moss Bros, 12630 Motor Way, Moreno Valley, CA 92555. Event is Free!  For more information visit our webpage at http://www.fighting4thetatas.org and to RSVP visit www.nonprofitsectorfoundation.org/RSVP 

Congratulations Joshlyn your Awesome!   Image

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Special Guest Joshlyn Earls on Lady J’s Wild World of Sports reviewing IBC!

Here is the link to the show yesterday: www.ustream.tv/recorded/26078431

Know your body!  IBC is real! 

WHY are African American women dying more than white women with INFLAMMATORY BREAST CANCER?

 

I am a black women with Inflammatory breast cancer and I want to know WHY I am being told because I am black my life expectancy is shorter than my white counter part with the same Inflammatory breast cancer.

I have always thought of myself as being a healthy person I walked, exercised, went to the doctor for check ups and yearly mammograms. Never drank alcohol, never used drugs, never smoked, never slept around and no breast cancer in my immediate family. With all of that said; May 29, 2011, I was diagnosed with Inflammatory Breast Cancer.

June 6, 2011 I started chemotherapy, a very aggressive chemotherapy.

November 2, 2011 I had bilateral breast cancer (I lost both of my tatas)

November 10, 2011 my drains were removed (Hurt to have them removed)

December 15, 2011 Radiation started

February, 2012 I started taking a chemo pill that I will take for the next 5 years of my life. Hopefully! I say hopefully because from all studies black women have poorer 5 year survival rates with Inflammatory breast cancer.

 

You may ask “What is Inflammatory Breast Cancer?” 

Well, Inflammatory Breast Cancer is the most lethal form of primary breast cancer a breast cancer often misdiagnosed with mastitis, misinterpreted and/or treated incorrectly compared to more common breast cancers.

 

At this point you are probable thinking, “I thought there was only one breast cancer”.  For those of you like me I was under the same assumption  until I was diagnosed with the worse breast cancer ever, according to my doctor, Inflammatory Breast Cancer.

 

Then I found out that Black women die more than white women with Inflammatory Breast Cancer, WELL this is GREAT.  Oh Oh, I can not forget to tell you that Inflammatory breast cancer comes back on you faster than any other breast cancer.

 

Understand breast cancer does not discriminate, so back to my question, WHY do black women die more than white women.

 

The answers I am getting and what is written is:

□       Black women do not go to the doctor for early detection.

Are we speaking of all black women I ask?

□       Lower socialeconomic standards

Let me understand, are you saying researchers, all Black Americans have lower social enonomic standards WOW.

□       Screening – Black Americans do not get screened (mammograms)

□       An unequal access to improvements in cancer treatment. 

 

Please join me for this important survey

I need to know how do you feel about what I have written.  And Why do you feel black women are dying more than white women with breast cancer?  What inequities have you , friend or a family member experienced?

Visit my organization at http://www.fighting4thetatas.org 

 

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