If women of both races (black and white) received the same treatment, death rates could fall by almost 20%,

A new report from the Centers for Disease Control and Prevention suggests that large gaps between black and white women in terms of mortality and stage of diagnosis continue to persist.This report also points out that African-American women still aren’t receiving the same quality of breast cancer treatment as white women typically do.

Once a woman receives abnormal mammography results, it takes longer for her to get a diagnosis if she’s black than if she’s white, studies have shown..  If women of both races received the same treatment, death rates could fall by almost 20%, Dr. Marcus Plescia, Director of the Division of Cancer Prevention and Control at CDC, told reporters Wednesday.

Please read the report dated November 14, 2012 follow the link:

http://thechart.blogs.cnn.com/2012/11/14/cdc-breast-cancer-more-deadly-in-black-women/comment-page-1/#comment-359980

Rare breast cancer poses new set of challenge

 

By Serena Gordon
HealthDay Reporter

FRIDAY, Oct. 5 (HealthDay News) — No doubt the ubiquitous pink ribbons, along with walks and races and the designation of October as National Breast Cancer Awareness Month, have focused the public eye on breast cancer and helped fund research for a cure.

But chances are good that most people still haven’t heard of a particularly aggressive type of the disease known as inflammatory breast cancer.

Though rare, involving 1 to 5 percent of breast cancer cases, according to the U.S. National Cancer Institute, inflammatory breast cancer poses significant hurdles. Mammograms often aren’t effective in detecting this type of cancer because there may be no discernible lump. Also, standard breast cancer treatments aren’t always effective for inflammatory breast cancer.

“This disease develops quickly over a few weeks,” explained Dr. Massimo Cristofanilli, a professor of medicine and director of translational medicine at Fox Chase Cancer Center in Philadelphia. “This cancer has the capacity to spread to the lymph nodes and distant sites quickly.”

The exact cause of inflammatory breast cancer is unknown, he said. According to the cancer institute, it usually develops in the cells that line the milk ducts and then spreads to other areas.

The primary symptoms are redness and noticeable swelling. Cristofanilli said that skin on the breast can resemble that of an orange peel. The disease is named inflammatory breast cancer because the breast looks inflamed. The swelling occurs because the lymph vessels in the skin become blocked and fluid doesn’t drain properly.

“Most women will present rapidly with an engorged breast. Their bra won’t fit anymore,” said Dr. Naoto Ueno, executive director of the Morgan Welch Inflammatory Breast Cancer Research Program and Clinic, and a professor in the department of breast medical oncology at the University of Texas M.D. Anderson Cancer Center in Houston.

“At this point, women often go to a primary care physician,” Ueno said. “They will usually diagnose mastitis, an infection of the breast. If you’ve had one to two weeks of antibiotics, and you’re not getting better, it could be inflammatory breast cancer, and you should have a biopsy.” A biopsy of breast tissue can confirm a diagnosis.

Cristofanilli said that “women need to remember that mammogram is not helpful for inflammatory breast cancer, so there’s usually no early diagnosis.” That factor combined with the aggressive nature of the disease means that the cancer often has metastasized, or spread to other parts of the body, by the time a woman sees a cancer specialist.

“Making a diagnosis and getting a biopsy quickly are critical,” he said.

The average survival for women diagnosed with inflammatory breast cancer is about three years, Cristofanilli said. For someone whose cancer has spread beyond breast tissue but not to distant sites, considered a stage 3 cancer, the average survival time extends to about five years with the latest multi-disciplinary care.

Ueno confirmed that many of the currently available treatments don’t do a great job with inflammatory breast cancer. “With stage 4 inflammatory breast cancer, the five-year survival is only 30 to 40 percent,” even with the best available treatment, he said. Stage 4 cancer has spread to distant sites, such as the lungs or brain.

Both experts said it’s important to seek care at a center with a lot of experience in treating inflammatory breast cancer. For a woman who doesn’t live close to such a center, Ueno suggested that she visit for an initial diagnosis and treatment plan and then arrange for the center’s specialists to work with her local cancer experts.

The first treatment for inflammatory breast cancer is chemotherapy, and possibly hormone therapy, according to Ueno and Cristofanilli. The goal is to eliminate any signs of the disease before doing a mastectomy. Because inflammatory breast cancer usually involves the whole breast, and doesn’t generally cause a lump, mastectomy is the only surgical option. Ueno said that surgery is usually followed by aggressive radiation.

If inflammatory breast cancer recurs after treatment, both experts suggested checking into clinical trials because researchers are constantly trying to find better ways to treat this type of cancer.

As with any cancer, the earlier it’s detected, the better.

“If you have any redness or swelling, see a breast specialist right away,” Cristofanilli urged. “Don’t delay.”

Special Guest Joshlyn Earls on Lady J’s Wild World of Sports reviewing IBC!

Here is the link to the show yesterday: www.ustream.tv/recorded/26078431

Know your body!  IBC is real! 

Are you aware it’s legal to patent human genes?

According to Breast Cancer Action they received a disappointing verdict last week in the most recent leg of our legal challenge to Myriad Genetics’ patents on the BRCA1 & 2 genes. We were in DC recently for oral arguments as the Federal Circuit reconsidered their initial ruling against us. Unfortunately, the same three-judge panel reached the same misguided conclusion: “yes, it’s legal to patent human genes.” The good news is we just heard from our lawyers at the ACLU that they’ll be requesting the Supreme Court to hear our appeal – again. We’ve been working on this legal challenge since 2009 and we won’t stop until corporate patents on the “breast cancer genes” are a thing of the past. Get involved

Campaign for Safe Cosmetics

The manufacturing giant Johnson & Johnson agreed to phase out chemicals linked to cancer from its baby and adult cosmetics products. Victories like this are important because they demonstrate that companies can and will make safer products, when activist pressure is strong enough. Breast Cancer Action

IBC FACTS:

The next time your child, teenager or young adult tell you they think they have a lump or something is wrong with their breast LISTEN to them!  If your family doctor tell you that it is impossible, they are too young.  I would suggest you go to a different doctor in order to save your child’s life.  Please read story below

12 Year Old Girl with IBC

1972: Nichini, FM. (1972). Inflammatory carcinoma of the breast in a 12-year-old girl. Archives of Surgery, 105(3), 505-8. No abstract available.

Carcinoma of the breast in the female child and adolescent is extremely rare. Approximately a dozen cases below the age of 20 can be accepted as truly proved. The case presented here is of further interest, since we believe it to be the first so-called inflammatory breast carcinoma described in a child. The lesion progressed rapidly locally with skin erythema, edema, and

fixation over half the breast. The affected breast was enlarged and generally replaced by tumor with fixation to the chest wall

Report of a Case: A 12-year-old girl consulted her family physician for a cutaneous eruption of the whole body, which was diagnosed as a viral exanthem. Results of physical examination at that time revealed a mass in the upper part of the left breast above a partially retracted nipple, and a definite enlargement of the left breast relative to the right.

Neither the patient nor her mother was aware of any abnormality in the breast at the time of the consultation. Two days later, a biopsy was performed and the mass was reported as an infiltrating carcinoma.

The skin over the whole left breast was erythematous and edematous, with all the clinical signs of an inflammatory carcinoma … It should be pointed out that the patient had been menstruating, albeit irregularly, since the age of 11.

MAMMOGRAM CAN’T DETECT”

AND

YOU DON’T HAVE TO HAVE A LUMP

 

 

 

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Safe Chemicals Act 2012

Photo taken from mbcc.org

 

Wow this act finally made it to the Senate!  We must still fight and make sure it is a law now.  http://www.thedailygreen.com/environmental-news/latest/safe-chemicals-act-2012-1209

 

Member Perspective: Joshlyn Earls

Member Perspective: Joshlyn Earls.

This article was written by Caitlin C from Breast Cancer Action.

Breast Cancer, One Woman’s Struggle

Breast Cancer, One Woman’s Struggle.

Please check out the link above!  Very great article about my stuggle, I promise! 🙂

WHY are African American women dying more than white women with INFLAMMATORY BREAST CANCER?

 

I am a black women with Inflammatory breast cancer and I want to know WHY I am being told because I am black my life expectancy is shorter than my white counter part with the same Inflammatory breast cancer.

I have always thought of myself as being a healthy person I walked, exercised, went to the doctor for check ups and yearly mammograms. Never drank alcohol, never used drugs, never smoked, never slept around and no breast cancer in my immediate family. With all of that said; May 29, 2011, I was diagnosed with Inflammatory Breast Cancer.

June 6, 2011 I started chemotherapy, a very aggressive chemotherapy.

November 2, 2011 I had bilateral breast cancer (I lost both of my tatas)

November 10, 2011 my drains were removed (Hurt to have them removed)

December 15, 2011 Radiation started

February, 2012 I started taking a chemo pill that I will take for the next 5 years of my life. Hopefully! I say hopefully because from all studies black women have poorer 5 year survival rates with Inflammatory breast cancer.

 

You may ask “What is Inflammatory Breast Cancer?” 

Well, Inflammatory Breast Cancer is the most lethal form of primary breast cancer a breast cancer often misdiagnosed with mastitis, misinterpreted and/or treated incorrectly compared to more common breast cancers.

 

At this point you are probable thinking, “I thought there was only one breast cancer”.  For those of you like me I was under the same assumption  until I was diagnosed with the worse breast cancer ever, according to my doctor, Inflammatory Breast Cancer.

 

Then I found out that Black women die more than white women with Inflammatory Breast Cancer, WELL this is GREAT.  Oh Oh, I can not forget to tell you that Inflammatory breast cancer comes back on you faster than any other breast cancer.

 

Understand breast cancer does not discriminate, so back to my question, WHY do black women die more than white women.

 

The answers I am getting and what is written is:

□       Black women do not go to the doctor for early detection.

Are we speaking of all black women I ask?

□       Lower socialeconomic standards

Let me understand, are you saying researchers, all Black Americans have lower social enonomic standards WOW.

□       Screening – Black Americans do not get screened (mammograms)

□       An unequal access to improvements in cancer treatment. 

 

Please join me for this important survey

I need to know how do you feel about what I have written.  And Why do you feel black women are dying more than white women with breast cancer?  What inequities have you , friend or a family member experienced?

Visit my organization at http://www.fighting4thetatas.org 

 

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