Are you aware it’s legal to patent human genes?

According to Breast Cancer Action they received a disappointing verdict last week in the most recent leg of our legal challenge to Myriad Genetics’ patents on the BRCA1 & 2 genes. We were in DC recently for oral arguments as the Federal Circuit reconsidered their initial ruling against us. Unfortunately, the same three-judge panel reached the same misguided conclusion: “yes, it’s legal to patent human genes.” The good news is we just heard from our lawyers at the ACLU that they’ll be requesting the Supreme Court to hear our appeal – again. We’ve been working on this legal challenge since 2009 and we won’t stop until corporate patents on the “breast cancer genes” are a thing of the past. Get involved

Campaign for Safe Cosmetics

The manufacturing giant Johnson & Johnson agreed to phase out chemicals linked to cancer from its baby and adult cosmetics products. Victories like this are important because they demonstrate that companies can and will make safer products, when activist pressure is strong enough. Breast Cancer Action

IBC FACTS:

The next time your child, teenager or young adult tell you they think they have a lump or something is wrong with their breast LISTEN to them!  If your family doctor tell you that it is impossible, they are too young.  I would suggest you go to a different doctor in order to save your child’s life.  Please read story below

12 Year Old Girl with IBC

1972: Nichini, FM. (1972). Inflammatory carcinoma of the breast in a 12-year-old girl. Archives of Surgery, 105(3), 505-8. No abstract available.

Carcinoma of the breast in the female child and adolescent is extremely rare. Approximately a dozen cases below the age of 20 can be accepted as truly proved. The case presented here is of further interest, since we believe it to be the first so-called inflammatory breast carcinoma described in a child. The lesion progressed rapidly locally with skin erythema, edema, and

fixation over half the breast. The affected breast was enlarged and generally replaced by tumor with fixation to the chest wall

Report of a Case: A 12-year-old girl consulted her family physician for a cutaneous eruption of the whole body, which was diagnosed as a viral exanthem. Results of physical examination at that time revealed a mass in the upper part of the left breast above a partially retracted nipple, and a definite enlargement of the left breast relative to the right.

Neither the patient nor her mother was aware of any abnormality in the breast at the time of the consultation. Two days later, a biopsy was performed and the mass was reported as an infiltrating carcinoma.

The skin over the whole left breast was erythematous and edematous, with all the clinical signs of an inflammatory carcinoma … It should be pointed out that the patient had been menstruating, albeit irregularly, since the age of 11.

MAMMOGRAM CAN’T DETECT”

AND

YOU DON’T HAVE TO HAVE A LUMP

 

 

 

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Safe Chemicals Act 2012

Photo taken from mbcc.org

 

Wow this act finally made it to the Senate!  We must still fight and make sure it is a law now.  http://www.thedailygreen.com/environmental-news/latest/safe-chemicals-act-2012-1209

 

Member Perspective: Joshlyn Earls

Member Perspective: Joshlyn Earls.

This article was written by Caitlin C from Breast Cancer Action.

Breast Cancer, One Woman’s Struggle

Breast Cancer, One Woman’s Struggle.

Please check out the link above!  Very great article about my stuggle, I promise! 🙂

WHY are African American women dying more than white women with INFLAMMATORY BREAST CANCER?

 

I am a black women with Inflammatory breast cancer and I want to know WHY I am being told because I am black my life expectancy is shorter than my white counter part with the same Inflammatory breast cancer.

I have always thought of myself as being a healthy person I walked, exercised, went to the doctor for check ups and yearly mammograms. Never drank alcohol, never used drugs, never smoked, never slept around and no breast cancer in my immediate family. With all of that said; May 29, 2011, I was diagnosed with Inflammatory Breast Cancer.

June 6, 2011 I started chemotherapy, a very aggressive chemotherapy.

November 2, 2011 I had bilateral breast cancer (I lost both of my tatas)

November 10, 2011 my drains were removed (Hurt to have them removed)

December 15, 2011 Radiation started

February, 2012 I started taking a chemo pill that I will take for the next 5 years of my life. Hopefully! I say hopefully because from all studies black women have poorer 5 year survival rates with Inflammatory breast cancer.

 

You may ask “What is Inflammatory Breast Cancer?” 

Well, Inflammatory Breast Cancer is the most lethal form of primary breast cancer a breast cancer often misdiagnosed with mastitis, misinterpreted and/or treated incorrectly compared to more common breast cancers.

 

At this point you are probable thinking, “I thought there was only one breast cancer”.  For those of you like me I was under the same assumption  until I was diagnosed with the worse breast cancer ever, according to my doctor, Inflammatory Breast Cancer.

 

Then I found out that Black women die more than white women with Inflammatory Breast Cancer, WELL this is GREAT.  Oh Oh, I can not forget to tell you that Inflammatory breast cancer comes back on you faster than any other breast cancer.

 

Understand breast cancer does not discriminate, so back to my question, WHY do black women die more than white women.

 

The answers I am getting and what is written is:

□       Black women do not go to the doctor for early detection.

Are we speaking of all black women I ask?

□       Lower socialeconomic standards

Let me understand, are you saying researchers, all Black Americans have lower social enonomic standards WOW.

□       Screening – Black Americans do not get screened (mammograms)

□       An unequal access to improvements in cancer treatment. 

 

Please join me for this important survey

I need to know how do you feel about what I have written.  And Why do you feel black women are dying more than white women with breast cancer?  What inequities have you , friend or a family member experienced?

Visit my organization at http://www.fighting4thetatas.org 

 

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